Karen Clay operates a medical ventilator to help her son Michael Phillips, 36, breathe. Michael has spinal muscular atrophy and is confined to his bed. He can breathe only with the aid of a machine. Here, they are photographed at their Tampa home July 19, 2017. ALESSANDRA DA PRA Tampa Bay Times
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‘Medicaid is a lifeline, but the Medicaid waiver is life.’ People fear losing benefits.

By ELIZABETH KOH, HERALD/TIMES TALLAHASSEE BUREAU (Published September 24, 2019) For almost every waking hour of his day, 33-year-old Jason Hahr needs someone else to do what his own body cannot. Hahr has spastic quadriplegic cerebral palsy, which means he needs a personal care assistant to physically help him perform the basic activities of daily […]

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Nebraskans with developmental disabilities wait for services

By MARTHA STODDARD, OMAHA WORLD-HERALD (August 10, 2019)–Erin Phillips has made great strides in the three years since moving out of her parents’ home. The 31-year-old has learned how to do her laundry entirely on her own. She takes showers with only a little nudging. She cleans her own bedroom and bathroom. That’s on top […]