Karen Clay operates a medical ventilator to help her son Michael Phillips, 36, breathe. Michael has spinal muscular atrophy and is confined to his bed. He can breathe only with the aid of a machine. Here, they are photographed at their Tampa home July 19, 2017. ALESSANDRA DA PRA Tampa Bay Times
Advocacy Healthcare News Social Services

‘Medicaid is a lifeline, but the Medicaid waiver is life.’ People fear losing benefits.

By ELIZABETH KOH, HERALD/TIMES TALLAHASSEE BUREAU (Published September 24, 2019) For almost every waking hour of his day, 33-year-old Jason Hahr needs someone else to do what his own body cannot. Hahr has spastic quadriplegic cerebral palsy, which means he needs a personal care assistant to physically help him perform the basic activities of daily […]

Advocacy Television

How a ‘Sesame Street’ Muppet became embroiled in a controversy over autism

Autistic self-advocates are changing discussions that, they say, have historically been “about us, without us.” (Published September 19, 2019) An autistic “Sesame Street” muppet is caught in a conflict between the most prominent autism organization in the United States advocating for early intervention, and autistic adults who see the condition as a difference, not a […]